Skip to main content

Champions of Change Story with Jennifer Carney, Preeclampsia Survivor and Patient Advisory Board Member

My son Donovan was born late on a Friday evening in early October in the nearest hospital to our house by a doctor I had never met. My son weighed in at 3 lbs. 2 oz at 32 weeks with an initial APGAR score of 3. At this point, my husband did not know what was wrong with us and though I was “awake” to some extent, I was not aware of where I was or what was happening. By the time I had arrived at the hospital, I had been having eclamptic seizures off and on for several hours alone on the floor of my kitchen. A family friend found me and called 911. The OB on call arrived shortly after I was brought in by ambulance. Donovan was delivered by emergency c-section less than 45 minutes later.
For me, eclampsia hit with very little warning. I felt sick for a day or two before, but not outside the realm of normal nausea and a mild headache. This was my second pregnancy after a relatively normal first pregnancy that ended in a c-section at 39 weeks because my son wanted to come out feet first. Although I had heard of preeclampsia before, I truly did not understand how serious it could be. Everything I read indicated that I was not at high risk as a second time mom with no previous history. I was not diagnosed with preeclampsia or eclampsia (and eventually HELLP syndrome, Acute Respiratory Distress Syndrome (ARDS), and sepsis) until after he was born. It caught everyone, including my original OB, off guard. 
Donovan spent 28 days in the NICU after being transferred to another hospital, thankfully mostly as a “feeder and grower.” I spent 8 days in the hospital, most of those in the ICU recovering from the additional complications caused by the uncontrolled seizures. On the 8th day, my husband took me home, helped me shower and get dressed and drove me to the hospital across town to meet and hold my son for the first time.
We are grateful to the OB on call and the entire team at the hospital who acted quickly to assess the situation and jump into action. The doctor later told me that she thought the nurses were joking with her when they called her in late on a Friday night for a complication that many OBs never see in their entire careers. After so much went wrong on that Friday, many things needed to go right to save both of us and I’m very aware that the fact that we live in a large city with many nearby hospitals made a huge difference in our outcome. 
Donovan is now a senior in high school and will be graduating this month. I’ve shared this story with him over the years and answered his questions as they come up. The experience led me to volunteer with organizations addressing both prematurity and preeclampsia and eventually led me to pursue a master’s degree in public health. Although the experience was difficult, I am very grateful for all of the great people and organizations that have come into my life as a result of eclampsia – including EndPreeclampsia and Comanche.
Meet Our Patient Advisory Board

You are not alone and not to blame.

Preeclampsia is not your fault. It is a complex disease that does not discriminate and affects many pregnant women around the world.

Contact Us

50 Beharrell St, Unit B
Concord, MA 01742

Contact Us

Comanche is a biopharmaceutical company developing an investigational siRNA medicine for preterm preeclampsia. We envision a world where all women and their babies have access to safe and effective therapies for treating life threatening complications of pregnancy, and those solutions must be evidence-based and affordable.

Sign up to receive email updates

Translate 🌎 💬